NORD

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Frontline Medical Communications and The National Organization for Rare Disorders (NORD) signed a strategic partnership agreement in 2014 to collaborate and develop innovative educational programs for healthcare providers (HCPs). Harnessing the expertise of each organization, FMC and NORD seek to improve awareness, understanding and recognition of rare diseases among HCPs to accelerate diagnosis and promote optimal care for patients. Other goals include updating HCPs on new treatment options and clinical care standards as well as facilitating the sharing of information among HCPs and rare disease medical experts. The partnership develops interactive resources and custom initiatives to meet the urgent, unmet need for HCP education on rare diseases as well as improving the lives of the 30 million Americans who suffer from nearly 7,000 rare disorders.

Frontline Medical Communications and NORD Develop Partnership | PDF
Listen to interview with NORD President/CEO Peter Saltonstall

R&D, Commercialization and Awareness of Rare Diseases | Article

Now Available: 2020 Rare Neurological Disease Special Report! Digital Edition | PDF

Now Available: Rare Cancers, Rare Pediatric Diseases, and Rare Rheumatologic Diseases

Special Reports | PDFs

CASE STUDY: Creating Sky High Level Interest in Rare Diseases | PDF

The 2020 Living Rare, Living Stronger NORD Patient and Family Forum™ (Cleveland, Ohio; July 18-20) is an annual rare disease conference providing patients and families with tools for living with rare diseases, and physicians and medical students with insights to bring to their practices and studies.  Why Physicians Should Attend: patients with rare diseases present unique challenges for physicians. Living Rare, Living Stronger presents a unique opportunity for connecting with patients and caregivers living with rare diseases. By attending, you will learn how to help patients even when you are not specialized in a particular rare disease, how to provide the best support to patients and how to supplement your knowledge about particular conditions or rare diseases as a whole. Registration includes a ticket to a very special event—the 2020 Rare Impact Awards®—honoring those who are making extraordinary contributions to the lives of rare disease patients and caregivers. The awards ceremony will take place at the iconic Rock and Roll Hall of Fame. This will be a show you won't want to miss! Learn more and register.

For more information about NORD, please contact:
Elizabeth Katz, Group Publisher
Tel: 973-224-7951
Email: [email protected]

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