The Rare Neurological Disease Report Now Available

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Parsippany – March 27, 2017 – Neurology Reviews®, a Frontline Medical Communications (FMC) print and digital media publication, is pleased to announce publication of the 3rd annual Rare Neurological Disease Special Report™, developed in partnership with NORD, the National Organization for Rare Disorders, the leading independent nonprofit representing the 30 million Americans with rare diseases.

Published as a supplement to the March issue of Neurology Reviews®, the 2017 Rare Neurological Disease Special Report™ is the most extensive to date. VP/Group Editor Glenn Williams highlighted this year’s coverage, which includes cannabinoids’ efficacy in rare pediatric epilepsies, new and potential therapies for neuromuscular disorders, and the clinical therapeutic potential of gene therapy; and, he acknowledged contributions from the Keck Graduate Institute, the Child Neurology Foundation, and the LGS Foundation (Lennox-Gastaut Syndrome). In addition, the Hereditary Neuropathy Foundation presented results from the inaugural Patient-Centered Charcot-Marie-Tooth (CMT) Summit, emphasizing the importance of patient-reported outcomes data, patient registries/networks, and underscoring the barriers to proper diagnosis, disease management, and treatment options, including gaps in standards of care guidelines.

Neurology Reviews® Publisher and NORD partnership liaison Elizabeth Katz said, “It is a profoundly rewarding experience to bring medical experts, researchers, academic institutions, and advocacy groups together. Our shared efforts to address patient needs and fill gaps in patient and HCP knowledge are evident in these important special issues, which serve as point-of-care tools to enhance the physician-patient dialogue.” She also acknowledged support from biopharmaceutical companies in helping to extend distribution.

The 2017 Rare Neurological Disease Special Report™ print issue reaches all neurologists in the U.S., in addition to primary care physicians and NPs and PAs whose practices involve a neurological focus. Reach extends through bonus distribution at major medical conferences (AAN, CMSC, AHS, NORD Summit, AES, etc.); online via the digital edition/app; and through reciprocal links with NORD, patient advocacy groups, and numerous professional associations.

Neurology Reviews® and NORD continue their partnership, bringing essential educational resources to physicians, healthcare professionals, and students, in support of their shared mission — to increase awareness and shorten the time to diagnosis by engaging all stakeholders involved in the screening, early detection, and care of patients with rare diseases. FMC provides regular news coverage of rare disease topics, keeping neurologists, pediatricians, hematologists, oncologists, medical geneticists, primary care physicians, and NPs and PAs informed about the latest information on the symptoms, diagnostic tools, and treatments of rare disorders.

To learn more about the extensive marketing opportunities FMC offers, designed to meet our clients’ specific goals and objectives, contact Elizabeth Katz at ekatz@mdedge.com or 973.224.7951.

About Neurology Reviews®

Neurology Reviews® is the first and original news source in neurology. Neurology Reviews® has a 24-year history of providing independent, unbiased news to neurologists and clinicians interested in the neurosciences. Neurology Reviews® covers medical conferences and clinical research findings, as well as specialty trends, expert opinions, and the breadth of influences affecting the practice of neurology. Experienced medical journalists deliver timely and relevant news affecting the practice of neurology and all its subspecialties. In addition to the monthly print issue reaching nearly 23,000 neurologists and clinicians interested in neuroscience, the Neurology Reviews® website, www.mdedge.com/neurologyreviews, features timely on-site conference reporting, audio and video interviews with researchers, expert commentaries, disease-specific microsites, self-assessment quizzes, patient handouts, supplements and sponsored multimedia educational programs, a calendar of relevant medical meetings, and a career center listing job openings around the country.

About the National Organization for Rare Disorders (NORD)®
The National Organization for Rare Disorders (NORD)® is the leading independent advocacy organization representing all patients and families affected by rare diseases.  NORD is committed to the identification, treatment and cure of the 7,000 rare diseases that affect 30 million Americans, or 1 in every 10 people.  NORD began as a small group of patient advocates that formed a coalition to unify and mobilize support to pass the Orphan Drug Act of 1983. For more than 30 years, NORD has led the way in voicing the needs of the rare disease community, driving supportive policies and education, advancing medical research, and providing patient and family services for those who need them most.  NORD represents more than 260 disease-specific member organizations and their communities and collaborates with many other organizations in specific causes of importance to the rare disease patient community. www.rarediseases.org.

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About Frontline Medical Communications

Frontline Medical Communications Inc. is one of the healthcare industry’s largest medical communications companies and a leader in digital, print, and live events. The Company leads in HCP-level targeting and is ranked 1st in combined web and print engagements. With the launch of MDedge™, our state-of-the-art integrated web portal, and audited database, FMC meets the marketing challenges of our clients with superior reach, optimal sponsorship opportunities, and flexible advertising programs. We reach 1.2 million+ physicians, NPs, PAs, and other HCPs through more than 30 media brands serving 22 distinct markets. Print reach surpasses 800,000 and extends digitally with newsletters, interactive Web sites, mobile apps, and digital editions. FMC delivers indexed and clinical review articles and medical news daily from on-site reporting at major medical meetings; many in collaboration with notable societies and medical associations. FMC produces live events and digital click-for-credit CME through affiliation with Global Academy for Medical Education, LLC (globalacademycme.com).

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Contacts:
Elizabeth Katz, Publisher, Neurology Reviews®,     973.224.7951, ekatz@mdedge.com
Jennifer Huron, Associate Director, Communications & Marketing, NORD, 203-744-0100, jhuron@rarediseases.org

Frontline Medical Communications
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Parsippany, NJ 07054-4609|Main: 973.206.3434|Fax: 973.206.9378
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National Organization for Rare Disorders
55 Kenosia Avenue
Danbury, CT 06810
Office: 203.744.0100
www.rarediseases.org