Frontline Medical Communications and The National Organization for Rare Disorders (NORD) signed a strategic partnership agreement in 2014 to collaborate and develop innovative educational programs for healthcare providers (HCPs). Harnessing the expertise of each organization, FMC and NORD seek to improve awareness, understanding and recognition of rare diseases among HCPs to accelerate diagnosis and promote optimal care for patients. Other goals include updating HCPs on new treatment options and clinical care standards as well as facilitating the sharing of information among HCPs and rare disease medical experts. The partnership develops interactive resources and custom initiatives to meet the urgent, unmet need for HCP education on rare diseases as well as improving the lives of the 30 million Americans who suffer from nearly 7,000 rare disorders.
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The 2020 Living Rare, Living Stronger™ NORD® Patient and Family Forum (July 18-19) is a two-day virtual conference that presents a unique opportunity for connecting to the rare disease community and improving your medical practice. Patients with rare diseases present special challenges for their medical caregivers. The Virtual Forum will feature dedicated content for medical professionals, interactive Q&As, inspiring online panels presented by patients, caregivers and top rare disease medical experts, fun, and surprises. By attending, you will learn the latest information on caring for patients with rare diseases, reducing delays in diagnosis, the promise of gene therapy and career/funding opportunities related to rare disease research.
To view the agenda, learn more or register, visit: https://rarediseases.org/living-rare-forum/
For more information about NORD, please contact:
Elizabeth Katz, Group Publisher
Email: [email protected]